Being a Spoonie my life is pretty full of medical appointments and procedures. Last year I was diagnosed with MALS (Median Arcuate Ligament Syndrome or Celiac Ligament Syndrome). The recommended treatment for this is a rather invasive abdominal surgery (6inch incision from my rib cage to my belly button). I do have a rather complicated medical history and my cardiologist is loathe to recommend surgery. As a final test I was sent for a Celiac Plexus Block, to see if my pain abated at all.
It is a relatively simple outpatient procedure, performed in a surgical center under general anesthesia (Zebras don’t react well to numbing agents). During my procedure I also had Sacroilliac injections as my SI joints are loose and deteriorated. The goal there was similar, pain relief. My block was performed on February 14th, Valentines Day.
If the block worked I should have been able to eat pain free for at least a day, maybe even a few weeks. The block did not work in my case, I had the same gastric pain as I’ve always had. Further confirmation that surgery is not a good choice for me. Good news and bad news I suppose. Unfortunately the SI injections caused a nerve reaction in my hips and I have had an increase in pain since the procedure. I have been working with my PT in an attempt to resolve the damage and regain mobility. Lesson learned. In the meantime I have been spending a good deal more time in the wheelchair.
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